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By Margaret H. Vickers (auth.)

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Additional info for Working and Caring for a Child with Chronic Illness: Disconnected and Doing It All

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I wanted readers to also have their eyes shine with tears; to feel provoked, angry, frustrated, and shocked. I wanted readers to know these women’s lives. Like Sandelowski (1994: 46), I was trying to convey the ideas, with artfulness not being considered a fault. Sandelowski refutes the idea that being artful is somehow not being faithful to your data: ‘art and science are not necessarily two 44 Working and Caring for a Child with Chronic Illness distinct things’ (Sandelowski, 1994: 46). She likens the process to one of working clay on a potter’s wheel.

Jamie had also had to deal with serious bouts of pneumonia, at least twice a year, which Charlene still found terribly distressing to talk about. Charlene had worked three part-time jobs to support herself and her son. She also reported being taken to court by her ex-partner, who tried to sue her for being an unfit mother. She won the case – but had to find the time and money for the court battle around everything else. Sandra’s son, Edward, had Attention Deficit Disorder (ADD). In addition to this, he had chronic tonsillitis as a baby, up until the age of two, necessitating Sandra keeping him with her at all times (even while working).

These interpretive processes were really what the entire exercise was about (Alvesson, 2003: 19). What follows is an example of data drawn from Stage 1. Readers will recall having been introduced to Dolly, who lived with her intellectually disabled daughter who also suffered from severe epilepsy. Dolly had recently separated from her husband.

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